Earlier this year, at age 36, Ben Reilly was diagnosed with MND, Motor Neurone disease. Ben, with his wife Emma, their 3 boys and support crew nicknamed “Team Reilly”, endeavours to bring hope to others with the disease that currently has no cure, through humour and love. MND is the name given to a group of diseases in which these neurones fail to work normally. Muscles then gradually weaken and waste, as neurone degenerate and die.
Ben has lost his ability to speak, so when he chatted to Bec, he spoke through a device.
“It didn’t really hit me when they told me the diagnosis. It’s like my brain wouldn’t take it in… It wasn’t until I read a pamphlet that they gave me and I read, no cure, no treatment, full body paralysis, respiratory failure, average lifespan of 2 years after diagnosis, that’s when it hit me hard and all I could think about was how my wife and kids would be after I left. I realised pretty quickly not only, that we are loved and supported by a lot of services, but Emma is incredibly strong and she will be looked after. That thought encourages me a lot.”
Through their Youtube channel, Ben and Emma hope to raise awareness of MND and to raise money for research. Ultimately, the Reilly Family hope to “inspire others to make the most of whatever time they have left to love God, love each other and love life.”
If you’d like to support The Reilly Family, subscribe to their Youtube Channel here or check out their T Shirts here. Purchase a Team Reilly vs MND tee and help make a difference! All sale proceeds will be split 50/50 with half being donated directly to MND Australia to help discover a cure and the other half to the Reilly family to assist in everyday costs and quality of life. You can also keep up to date with the family on their Facebook page here.